I Miss These -Random Alpha Gal Update


 This is a grilled cheese sammy I made for Ellen a couple of days ago. It’s on keto bread, so low carb. But it has real cheese on it, which I can no longer indulge in.  

Apparently I truly have become histamine intolerant or something. On the way to the Paul McCartney concert my “new” pants I got at a local thrift store set off my histamine alarm bells and my ears buzzed for the next 12+ hours; tinnitus I believe. In the thrift stores they don’t wash donated clothes but spray or steam them with some sort of solution. Even after I’d washed them the smell was super strong. I put a throw over my lap when I realized what was going on, but the damage was done. I’ve washed both pair of jeans twice since we came home and they still smell!  They must have really doused them.

Anyway. 

The point being. I’ve had to get new pants because I’ve lost about 20 lbs so far. I probably could lose more weight  but my “safe” foods include too many carbs; including oatmeal, rice, potatoes, regular unflavored potato chips and regular unflavored corn chips. I think I’m going to just quit buying potatoes and any sort of chips that are safe for me. The only sugar I eat is in the oatmeal or rice.  Though sometimes when a craving for sweetness I fudge and just have a teaspoon of sugar. I only eat the raw sugar. I’ve not reacted to the pure cane sugar before. Some people react to white sugar if it has been processed through bone char filters as part of the bleaching process, I believe. That has never seemed to bother me. A small mercy for which I am grateful, but I try not to push the envelope.  

I have been eating only a bite or two of vegetables (cooked) per day, and maybe a small slice of pear or apple occasionally. In small amounts like that I don’t seem to get a histamine dump; which is what causes the tinnitus and heart palpitations/tachycardia.

The weight loss has been great, but I miss grilled cheese sandwiches with a bowl of tomato soup. Or just a cup of coffee. I don’t miss beef.  I do miss real pig bacon. If I ever get money ahead I’ll invest in some of the alpha gal safe pig bacon as a splurge. Maybe my MCAS would let me have a teensy bite.  

My appointment with the allergist on the 8 th, I think it was; was a bit of a joke  I told him all of my symptoms; all he did was mutter “uh huh, uh huh” as he was making notes. Then he gave me one of those allergy tests on my back which showed I’m only allergic to roaches. He had them draw blood for another iGe alpha gal test, gave me a few sheets of paper with basic alpha gal info and sent me on my way. Oh, wait, because I mistakenly told him I’d had a headache since this all began, he wanted an MRI of my head.  But I doubt insurance would approve it. Besides it’s not really a headache, more like a sinus pressure.  But I don’t have the words to describe it.  

That was all over 2 weeks ago and I haven’t even heard back from them on the results of the blood test yet.

I don’t know who I will be able to go to about seeing if I really have MCAS or not. 

Stay tuned.   





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